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Home / Kristin’s Corner

Kristin’s Corner

I Dont Have It So Bad…

When people find out that I have 3 children with Autism often the response is, WOW, I feel so bad for you, or how do you handle that? I use the canned answer that I’ve use for a few years, well as my grandmother use to say, always someone out there worse off than you. I do try to live by this, sure I have days of why me? Don’t even get me started on that man made term God does not give you more than you can handle. Just last week I was in the audiology department at Nationwide Children’s hospital with my youngest son who is moderately to severely Autistic. Evan has some verbal skills, he can tell me for the most part what he wants. I have to admit I NEVER thought that was going to be possible. A few months back he had to have his ...

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Self-Advocacy: Lets Listen to Our Kids

Self advocacy is something we try to teach our children with autism. Stand up for yourself ,make your wants, thoughts and needs known. Often times our children have problems with anxiety and are in fear of speaking their minds or they can’t find the right words. School is a place that should encourage this life skill that is so very important for them to succeed. Lets face it, school is stressful for many of our children. When a child is verbal enough to say this bothers me, or that sound or smell is just too much for me, maybe people should listen to them? I could be wrong here, it just might help prevent a total meltdown. No, I’m not saying that *John* should get out of doing his math homework because he does not feel like it.  John should not be forced to sit next to another child that ...

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Just Another Autism Study…..

autismface

What do we have here boys and girls, another Autism study. Week after week I read all of these studies, some of them make the news, while some make me bust out laughing. I often think, who in the HELL funds some of these? Do some of these places have a bottomless checkbook?  Or lack any and all common sense!?  As a parent of 3 children with different forms of Autism, sure I would like to know the cause, but at what cost? Lets say we do find the silver bullet, direct cause of Autism, then what? If it is purely genetic, we are MANY years away from gene therapy. Lets stop and think about some of these studies…. A woman who is overweight has a high chance of having a child with Autism. Really? What’s a few extra fat cells have to do with Autism? I know that I’ve been holding onto a few extra ...

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Parents of Severely Ill Children See Benefits As Caregivers, Says Study…

Dr. John Carosso added the following, in this research, parents of severely ill children report the deep meaning and reward in providing care (yes, the stress is reported as significant, but so are the reward and growth): Benefits often coexist with the negative and stressful outcomes for parents who have a child born with or later diagnosed with a life-limiting illness, says a recent study led by a researcher at the University of Waterloo. While the challenges are numerous and life-changing and stress levels high, the vast majority of parents who participated in the Waterloo-led research reported positive outcomes as well, a phenomenon known as posttraumatic growth. The findings appear in the most recent issue of the American Journal of Orthopsychiatry. “What is pivotal is the meaning the parents make – what it means to them to be a parent who is doing more than parenting: they are care-giving as ...

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The Autism Evaluation

Chances are you have spoken to your child’s pediatrician and they agree that maybe it’s time to have an evaluation for Autism. Maybe your child’s pediatrician will not even give you the time of day, but you are moving forward and going with your gut feeling. I’m often asked what should I expect from this evaluation? What questions should I ask? What do I do if the doctor thinks my child has it? My mother in law thinks I’m crazy and there is NOTHING wrong with my child. DEEP BREATHE & Calm Down, Yeah right! Easy for you to say Kristin, this is my child we are talking about here I know, I’ve been in your shoes before I always tell parents *Bring a list of concerns with you* Okay, what do you mean? Write down things you want to talk to the doctor about. List them from MOST important ...

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